Optimizing XLMTM care requires an interdisciplinary approach
A multidisciplinary care team for XLMTM
Optimal care of patients with X-linked myotubular myopathy (XLMTM) should be provided by an integrated, multidisciplinary team, led by a neuromuscular specialist.1,2 Neuromuscular centers are specially equipped to assist patients in getting an accurate diagnosis and standard of care.
The XLMTM care team may comprise specialists in:
Additional support to address specific medical complications related to the underlying myopathy may include1,2:
- Speech therapy
- Mental health
- Social services